Saturday, April 18, 2015

Learning about our new normal

I stopped by the library the other day to pick up some books about Down Syndrome and adoption.  There aren't any (that I could find, anyway) that discuss both.  So I chose these:
Babies with Down Syndrome was suggested to me in one of my adoption groups.  It's supposed to be one of the best books to read when you're expecting a child with that magical extra gene.  We read My Friend Has Down Syndrome to the kids, and it was really good!!  I would like to find more children's books that have to do with sibling that have DS.  I'm sure they're out there...we just need to find them!
Bloom: Finding Beauty in the Unexpected is something that I started reading here and there when we would browse around Barnes and Noble.  I've read about half of it...I'll probably buy it at some point, I would love to own it.  The author, Kelle Hampton, does an amazing job telling the story of the birth and the first year of her daughter's life.  Nella was born with Down Syndrome, after a perfect pregnancy, labor and delivery.  Kelle had no idea she was giving birth to a baby with DS.  I would not recommend reading this book without tissues nearby.  Kelle explains how heart wrenching that first 24 hours was after giving birth to Nella.  Realizing that she wasn't the baby they were expecting, and how they had to grieve the baby they thought they were welcoming was heart wrenching.  One of my favorite parts in the book is when she wrote about the minutes after she had her.  This is what Kelle writes: "I will never forget my daughter in my arms, opening her eyes over and over...she locked eyes with mine and stared...bore holes into my soul.  Love me. Love  me.  I'm not what you expected, but oh, please love me." Gah! *tears*  Looking back, they wouldn't have it any other way.  (That's pretty much the only thing I've ever heard from parents of children with DS.)  Really though, this book is so good!  If you know anyone with DS, or even if you don't, please read this book!  You won't be disappointed, I promise!!  Kelle has a blog that I started following shortly after Nella was born.  She also writes about her family; her husband, her stepsons, her oldest daughter, Lainey, and their newest addition, Dash, along with Nella, of course.  You can find her blog here.

We've joined the Down Syndrome Guild of KC, we've contacted Children's Mercy Down Syndrome clinic, and we're getting in contact with more and more families of children with DS.  This is a whole new world for us.  One we know nothing about yet, but one that we are excited to explore!!  We just need our girl here with us!  asap!

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